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PURE Program - Pediatric Urogenital Reproductive Endocrine Disorders Program

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The PURE Program is a highly specialized multidisciplinary program for patients with disorders of sexual development (DSD). DSDs are a group of medical conditions where there is a difference between the individual’s genital appearance and/or internal reproductive organs and the number and/or apperance of their chromosones. The team is comprised of pediatric endocrinologists, a pediatric surgeon, a pediatric gynecologist, pediatric urologists, a geneticist, a child and adolescent psychiatrist and a social worker. This multidisciplinary team is designed to address medical, surgical, psychological, and social needs of the patients and their families. Medical care is initiated in the neonatal period or at the time of initial diagnosis and continues through puberty, adolescence, and adulthood. Pubertal development, sexual function, fertility, and reproduction are addressed. Our goal is to provide comprehensive, efficient, long term care to these special patients and their families.

Our Team provides:

Neonatal Diagnostic Team
24 hour on call multidisciplinary team to assist with neonatal diagnosis and treatment for children born with ambiguous genitalia. For more information call (516) 472-3750.
Pediatric Pelvic Reconstruction Surgery
The Pediatric Urogenital Reconstructive Pelvic Surgery (PURPoSe) Program combines the highly specialized skills of Pediatric Gynecology, Pediatric Urology, and Pediatric Colorectal Surgery to provide minimally invasive diagnostic and treatment approaches to DSDs and other congenital malformations of the pelvis.
  • Cystoscopy/Vaginoscopy
  • Vaginoplasty
  • Introitoplasty
  • Clitoroplasty
  • Mobilization of persistent urogenital sinus
  • Gonadectomy
  • Laparoscopic Reconstruction
  • Posterior Sagital Approaches
Vaginal Dilation Program
Noninvasive approach to treatment for vaginal agenesis or vagina atresia in a structured and nurturing environment where proper technique is emphasized and social support is provided. For more information call the Division of Pediatric and Adolescent Gynecology at 516-390-9258
Support Groups
The PURE program strives to connect our patients with the most current resources and support networks available. Supports groups enable patients to connect with their peers and address their concerns around body image, sexuality, and reproduction in a safe environment with a professional group facilitator. We also offer guest speakers, patient testimonial, and mentoring for patients with new diagnoses. For more information, please contact Tracy Schachter, LMSW at Tschachter@northwell.edu or 516-572-3726.

For questions, concerns or referrals please email us at: PUREprogram@northwell.edu
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